ouvir notícia
Amanhã, dia 28 de fevereiro, assinala-se o Dia das Doenças Raras 2011.
Durante a passada semana, os portugueses passaram a ter acesso à versão portuguesa do Portal para as doenças raras e os medicamentos orfãos (www.orpha.net). Um portal que não só descreve as doenças raras identificadas mas que também permite ter conhecimento das investigações em curso e do trabalho que as diversas associações fazem a nível mundial.
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